It's difficult for people to appreciate how terrifying this truly is. I also have Myasthenia Gravis for the last 20 years, and 5 years ago I was also hospitalised with severe breathing difficulties.
Difficulties with speech are an everyday battle, made worse by how you don't recognise how poor your own speech is until talking to a stranger.
But the dangers around swallowing are the worst. Choking to death on a single sip of water is very real, and every meal time can be an anxious, difficult experience. You end up cutting food into the size pieces an early toddler might have. Eating soft foods makes no difference, it's the muscles that effect the swallowing ability that don't work very well.
It's such an incredibly rare disorder, and I am so sorry to hear that William Hunt has it too and has been in such a bad way.
I received a heavy treatment in 2020 that changed my life and sent the Myasthenia into a remission of sorts, so will be hoping that the same is being done for William Hunt and he enjoys a full recovery.
Apologies for the self indulgence, but I wanted to add some context surrounding the troubles our fellow member is going through from my experience.
Thanks for providing the "Expert Analysis" to us all to get a better understandng of the situation regarding this disease
Though sorry to read that it is from personal experience.
To both William and you: all best wishes to get over and dealing with all of this misery.
And thanks to Bliman for the updates.
Edited by Henri Greuter, 31 October 2024 - 08:21.
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